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Terminal care. --- Palliative Care.

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Death rituals are a universal feature of every human culture across the world. Every human must eventually face the stark reality of death, and many cultures and religions have sought to make sense of death and bring solace to the people through bereavement rituals. Infant death has been commonplace in most of human history. Despite the high prevalence of pregnancy loss (25% of all pregnancies) and infant death (0.6% of liveborn infants), these deaths are rarely discussed openly. The parents’ grief often is underestimated or ignored by their social network who may never have met the baby and/or feel uncomfortable discussing the loss of a child. On the other hand, the families enduring perinatal loss experience profound grief, loss of the actual and imagined future for that child, and the baby is never forgotten. Thus, parents seek to have their baby remembered through the creation of keepsakes, memories, and rituals. Having a supportive environment that honors their loss and their child’s memory and helps to facilitate meaningful rituals can have a profound effect on their long-term bereavement. There is a large amount of literature on death rituals across cultures but most books include infants only briefly and miscarried or stillborn babies are not mentioned at all. This text seeks to fill this substantial gap through review of existing literature paired with dozens of interviews with clinicians and caregivers across many disciplines in the hospital and community as well as bereaved family members who have gone through perinatal loss. The authors recruited in Bereavement Rituals after Pregnancy Loss or Infant Death across U.S. Cultures are a broad group of experts that include clinicians in palliative care and perinatal bereavement, nurses and clergy from different religious groups. The book is broken up into three main sections. The first provides a history and theoretical basis for perinatal death rituals. The second includes an overview of common beliefs and practices in major US religious and cultural groups. The third focuses on the roles of the health care team members and offers a practical how-to guide for health care providers to support families through rituals that fit their personal values and needs.

Pediatrics. --- Palliative treatment. --- Palliative Care.

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Palliative treatment --- Palliative Care. --- Clinical Competence.

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Over the last 50 years palliative care has usually been associated with cancer patients but more recently there has been increased discussion of the role of palliative care for neurological patients. In the past years, neurology has moved from being a purely diagnostic area to a very therapeutically active one. A further step needs to be taken to modify the therapeutic activity from “cure” to “care” depending on the patient’s disease trajectory. Palliative care has been associated with care at the end of life, whereas it may be appropriate earlier in the disease progression, and will extend after death in the support of bereaved families. The care of patients with neurological disease, and their families, will encompass the psychological, spiritual and existential issues and neurologists, and the teams in which they work, should develop skills to consider all aspects of care, in order to maximize the quality of life of all involved, and enable patients to die peacefully.

palliative care --- symptom control --- bereavement --- dying --- psychological care

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This new edition features three new chapters--'Spiritual Care in Palliative Care,''Psychological Considerations,'and'Bereavement'--as well as specific guidelines about • advance care planning at all phases of cancer• understanding complex family dynamics and communication challenges• partnering with interpreters in the care of patients and family members with limited English-language proficiency• special considerations to take into account for LGBTQ+ patients and their loved ones• caring for patients who have a serious mental illness along with a cancer diagnosis• nonpharmacologic management of pain and other symptoms associated with cancer or its treatment.

Pain. --- Palliative Care. --- Neoplasms. --- Pain --- Cancer --- Treatment. --- Palliative treatment.