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Book
Testing Knowledge : Toward an Ecology of Diagnosis, Preceded by the Dingdingdong Manifesto
Authors: ---
Year: 2021 Publisher: Brooklyn, NY punctum books

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"This volume presents the collective adventure of Dingdingdong, the Institute for the Co-production of Knowledge about Huntington’s Disease, founded in 2012 between Paris and Brussels.Katrin Solhdju’s Testing Knowledge: Toward an Ecology of Diagnosis pursues the question of taming the violence of the new species of medical foreknowledge represented by genetic testing. Adopting historical and epistemological perspectives on diagnostic situations, including observations from anthropological field research, speculative storytelling, and ancient oracles, Testing Knowledge proposes a new ecology of predictive diagnostic gestures, which potentially concern us all.Testing Knowledge is preceded by the Dingdingdong collective’s Manifesto (2013), which tells the story of the young Alice Rivières, who in 2006 took the presymptomatic, genetic test, foretelling her that she will eventually develop Huntington’s. Her first-person account of the revelation of her test results, which she experienced as an act of poisoning or cursing, pulls the reader into the manifold ethical, psychological, and existential issues inherent to medical predictions.Testing Knowledge is also preceded by a foreword from Alice Wexler, author of Mapping Fate: A Memoir of Family, Risk, and Genetic Research, and is followed by an afterword by philosopher Isabelle Stengers."


Book
Patient Engagement in Health and Well-Being: Theoretical and Empirical Perspectives in Patient Centered Medicine
Authors: ---
Year: 2018 Publisher: Frontiers Media SA

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At present citizens are more aware of their health and care rights and more literate about their disease. Furthermore the continuous development of technological and bio-medical solutions are alimenting the expectation for longer and better life expectancy, even despite the diagnosis. Patients require to be higher involved in the decision making about their care and are willing to deeply entangle all the possible treatment options, their advantages, and their risks. In other terms, citizens today want to be treated not only as “client” but mainly as partners of the medical action and as co-authors of the success of their healthcare pathway. Due to this socio-psychological change in patients’ attitude, healthcare systems today are claimed to a deep revision of their practices and organizational models in order to become better responsive to patients’ expectation and more sustainable and effective in the management of their services. Patient participation and engagement in healthcare management, indeed, is today acknowledged by policy makers and healthcare experts as a valuable option to orient changes and actions of the healthcare systems. Several empirical studies have demonstrated the positive outcomes of a participatory care approach at the clinical, psychosocial, and economic levels. Patient Engagement, thus, appears today not only an ethical but also a pragmatic imperative for the innovation and the improvement of healthcare system. Moving from these premises, this e-book collects first research experiences, conceptual contribution and review of good practices in the area of Patient Engagement promotion. The e-book also discusses the relevance and the theoretical linkages between the concept of Patient Engagement and that one of Patient Centered Medicine.


Book
Organising care around patients : stories from the frontline of the NHS
Authors: ---
ISBN: 1526147440 1526147459 Year: 2021 Publisher: Manchester : Manchester University Press,

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Healthcare aims to be patient-centred but a large gap remains between the fine words and the reality. Care often feels designed for the convenience of the organisations that deliver it, and not enough around patients and their families, or even around the frontline staff who provide it. Why does this happen? What does it feel like? What can be done about it? This book stimulates reflection on these questions by listening closely to those at the frontline. It provides accounts from patients, carers and healthcare professionals who are patients about what it's like when services get it right, and wrong, from birth up to the end of life. Quite simply, we want to draw upon the power of storytelling - which is increasingly valued as a tool for learning - to help policymakers and practitioners to understand how to deliver better care. We also hope to enlighten the general reader about how they might go about navigating "the system" while it remains imperfect. There is a growing literature of first-person accounts from patients and from healthcare professionals. This book differs by providing a collection of narratives of experiences of the NHS in England to paint a rich and varied picture. Alongside these narratives we provide some international context, and an overview of the history of moves towards a more patient-centred approach to care. We present the theory and practice of storytelling in the context of healthcare. We also seek to help the reader to draw out the practical learning from the individual accounts.


Book
Feeling medicine
Author:
ISBN: 9781479836338 1479836338 9781479878666 1479878669 9781479897780 1479897787 9781479893041 1479893048 Year: 2020 Publisher: New York

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The emotional and social components of teaching medical students to be good doctorsThe pelvic exam is considered a fundamental procedure for medical students to learn; it is also often the one of the first times where medical students are required to touch a real human being in a professional manner. In Feeling Medicine, Kelly Underman gives us a look inside these gynecological teaching programs, showing how they embody the tension between scientific thought and human emotion in medical education. Drawing on interviews with medical students, faculty, and the people who use their own bodies to teach this exam, Underman offers the first in-depth examination of this essential, but seldom discussed, aspect of medical education. Through studying, teaching, and learning about the pelvic exam, she contrasts the technical and emotional dimensions of learning to be a physician. Ultimately, Feeling Medicine explores what it means to be a good doctor in the twenty-first century, particularly in an era of corporatized healthcare.


Book
Neonatal Nutrition for Inflammatory Disorders and Necrotizing Enterocolitis
Author:
Year: 2020 Publisher: Basel, Switzerland MDPI - Multidisciplinary Digital Publishing Institute

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This Nutrients Special Issue focuses on neonatal nutritional advances for inflammatory disorders affecting infants such as necrotizing enterocolitis (NEC). Nutrition can significantly impact the development of certain diseases that afflict infants. This Special Issue aims to bring together the latest research on the role of nutrition in preventing or impacting neonatal disorders. Specifically, this Special Issue focuses on the role of breast milk or donor breast milk and the various components in milk that have been demonstrated to protect against NEC and other inflammatory diseases. This issue provides a comprehensive composite of the advances in nutritional strategies that can modulate or prevent neonatal intestinal disorders.


Book
Betrokkenheid op de verpleegafdeling : onderzoek naar de interactie tussen verpleegkundigen, patiënten en artsen op verpleegafdelingen door middel van participerende observatie
Authors: ---
ISBN: 9035210255 Year: 1984 Volume: vol 50 Publisher: Gent De Tijdstroom

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Dit boek is een verslaglegging van de onderzoek naar de interactie tussen verpleegkundigen, patiënten en artsen op verpleegafdelingen. Veldwerkonderzoek (participerende observatie) is verricht om in deze interactieprocessen inzicht te verkrijgen.

Keywords

Nursing --- Verpleegkunde --- Nurse-Patient Relations. --- Patient Participation. --- Interpersonal Relations. --- Gender Issues --- Husband-Wife Communication --- Partner Communication --- Relations, Gender --- Gender Relations --- Social Interaction --- Communication, Husband-Wife --- Communication, Partner --- Communications, Husband-Wife --- Communications, Partner --- Gender Issue --- Gender Relation --- Husband Wife Communication --- Husband-Wife Communications --- Interaction, Social --- Interactions, Social --- Interpersonal Relation --- Issue, Gender --- Issues, Gender --- Partner Communications --- Relation, Gender --- Relation, Interpersonal --- Relations, Interpersonal --- Social Interactions --- Friends --- Emotional Intelligence --- Patient Activation --- Patient Empowerment --- Patient Engagement --- Patient Involvement --- Patient Participation Rates --- Activation, Patient --- Empowerment, Patient --- Engagement, Patient --- Involvement, Patient --- Participation Rate, Patient --- Participation Rates, Patient --- Participation, Patient --- Patient Participation Rate --- Refusal to Participate --- Nurse Patient Relations --- Nurse Patient Relationship --- Nurse Patient Relationships --- Nurse-Patient Relation --- Patient Relations, Nurse --- Patient Relationship, Nurse --- Patient Relationships, Nurse --- Relations, Nurse Patient --- Relations, Nurse-Patient --- Relationship, Nurse Patient --- Relationships, Nurse Patient --- Nurse-Patient Relations --- Patient Participation --- Interpersonal Relations --- Social Relationships --- Relationship, Social --- Relationships, Social --- Social Relationship --- Social Behavior


Periodical
Patient intelligence.
ISSN: 11793198 Year: 2009 Publisher: [Auckland, NZ] : Dove Medical Press,

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Periodical
Health expectations.
Author:
ISSN: 13696513 13697625 Year: 1998 Publisher: [Oxford, England] : Blackwell Science Ltd.,

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Keywords

Hygiene. Public health. Protection --- gezondheidszorg --- Medical care --- Public health --- Medical policy --- Patient compliance --- Soins médicaux --- Santé publique --- Politique sanitaire --- Patients --- Periodicals --- Périodiques --- Coopération --- Health planning --- Health Services Research. --- Health Policy. --- Patient Participation. --- Health planning. --- Medical policy. --- Public health. --- Participation du public. --- Politique de la santé --- Santé publique. --- Health Sciences --- Law --- Social Sciences --- General and Others --- Policies --- Public Policy & Administration --- patient-centered care --- health care policy --- health services --- patient care --- quality improvement --- Health Services Research --- Health Policy --- Patient Participation --- Comprehensive health planning --- Health care planning --- Health services planning --- Medical care planning --- Planning --- Health services administration --- Patient Activation --- Patient Empowerment --- Patient Engagement --- Patient Involvement --- Patient Participation Rates --- Activation, Patient --- Empowerment, Patient --- Engagement, Patient --- Involvement, Patient --- Participation Rate, Patient --- Participation Rates, Patient --- Participation, Patient --- Patient Participation Rate --- Refusal to Participate --- National Health Policy --- Health Policies --- Health Policies, National --- Health Policy, National --- National Health Policies --- Policies, Health --- Policies, National Health --- Policy, Health --- Policy, National Health --- Policy Making --- Action Research --- Health Services Evaluation --- Healthcare Research --- Research, Medical Care --- Health Care Research --- Medical Care Research --- Research, Health Services --- Evaluation, Health Services --- Evaluations, Health Services --- Health Services Evaluations --- Research, Action --- Research, Health Care --- Research, Healthcare --- Human medicine --- Community health --- Health services --- Hygiene, Public --- Hygiene, Social --- Public health services --- Public hygiene --- Social hygiene --- Health --- Human services --- Biosecurity --- Health literacy --- Medicine, Preventive --- National health services --- Sanitation --- Health care policy --- Health policy --- Medicine and state --- Policy, Medical --- Public health policy --- State and medicine --- Science and state --- Social policy --- Government policy --- Law and legislation --- Political aspects --- Healthcare Policy --- Healthcare Policies --- Policy, Healthcare --- Health Care Policies --- Care Policies, Health --- Health Care Policy --- Policies, Health Care --- Policies, Healthcare --- Policy, Health Care


Book
Se mobiliser pour la santé : des associations témoignent
Author:
ISBN: 2356710035 2356713530 2356710930 9782356710031 Year: 2009 Publisher: Presses des Mines

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Le domaine de la santé a été largement transformé depuis une vingtaine d’années par l’action des associations de patients. Ces associations s’impliquent dans la production et la diffusion de connaissances sur les maladies et les questions de santé ; elles jouent un rôle actif dans l’émergence et la consolidation des mobilisations collectives autour des problèmes de santé ; elles sont reconnues comme des acteurs à part entière de la démocratie sanitaire aux côtés des pouvoirs publics, des professionnels et des acteurs économiques. Face aux mutations pressantes du domaine, elles pensent et explorent de nouvelles formes d’action associatives, de nouveaux modes d’intervention publique. Cet ouvrage rend compte directement de l’expérience des associations, à travers une série de discussions collectives conduites avec une cinquantaine d’entre elles. Ces témoignages éclairent la compréhension du fonctionnement associatif et permettent d’appréhender les défis auxquels les associations sont aujourd’hui confrontées ; ils sont destinés à favoriser le dialogue entre les usagers, le monde politique et les professionnels.

Keywords

Patients' associations --- Patient advocacy --- Consumer Participation --- Organizations, Nonprofit --- Patient Acceptance of Health Care --- Attitude to Health --- Organizations --- Consumer Organizations --- Community Health Services --- Health Care Economics and Organizations --- Delivery of Health Care --- Health Services --- Health Care --- Health Care Quality, Access, and Evaluation --- Health Care Facilities, Manpower, and Services --- Voluntary Health Agencies --- Patient Participation --- Healthcare Facilities, Manpower, and Services --- Healthcare Quality, Access, and Evaluation --- Community-Based Distribution --- Contraceptive Distribution --- Delivery of Healthcare --- Dental Care Delivery --- Distribution, Non-Clinical --- Distribution, Nonclinical --- Distributional Activities --- Healthcare --- Healthcare Delivery --- Healthcare Systems --- Non-Clinical Distribution --- Nonclinical Distribution --- Delivery of Dental Care --- Health Care Delivery --- Health Care Systems --- Activities, Distributional --- Activity, Distributional --- Care, Health --- Community Based Distribution --- Community-Based Distributions --- Contraceptive Distributions --- Deliveries, Healthcare --- Delivery, Dental Care --- Delivery, Health Care --- Delivery, Healthcare --- Distribution, Community-Based --- Distribution, Contraceptive --- Distribution, Non Clinical --- Distributional Activity --- Distributions, Community-Based --- Distributions, Contraceptive --- Distributions, Non-Clinical --- Distributions, Nonclinical --- Health Care System --- Healthcare Deliveries --- Healthcare System --- Non Clinical Distribution --- Non-Clinical Distributions --- Nonclinical Distributions --- System, Health Care --- System, Healthcare --- Systems, Health Care --- Systems, Healthcare --- Patient Activation --- Patient Empowerment --- Patient Engagement --- Patient Involvement --- Patient Participation Rates --- Activation, Patient --- Empowerment, Patient --- Engagement, Patient --- Involvement, Patient --- Participation Rate, Patient --- Participation Rates, Patient --- Participation, Patient --- Patient Participation Rate --- Agencies, Voluntary Health --- Agency, Voluntary Health --- Health Agencies, Voluntary --- Health Agency, Voluntary --- Voluntary Health Agency --- Services, Health --- Health Service --- Service, Health --- Healthcare Economics and Organizations --- Community Healthcare --- Health Services, Community --- Services, Community Health --- Community Health Care --- Care, Community Health --- Community Health Service --- Community Healthcares --- Health Care, Community --- Health Service, Community --- Healthcare, Community --- Healthcares, Community --- Service, Community Health --- Organizations, Consumer --- Consumer Organization --- Organization, Consumer --- Non-Governmental Organizations --- Nongovernmental Organizations --- Organizations, Nongovernmental --- Non Governmental Organizations --- Non-Governmental Organization --- Nongovernmental Organization --- Organization --- Organization, Non-Governmental --- Organization, Nongovernmental --- Organizations, Non-Governmental --- Health Attitude --- Attitude, Health --- Attitudes, Health --- Health Attitudes --- Health, Attitude to --- Acceptability of Healthcare --- Acceptors of Health Care --- Health Care Utilization --- Nonacceptors of Health Care --- Patient Acceptance of Healthcare --- Acceptability of Health Care --- Health Care Seeking Behavior --- Care Acceptor, Health --- Care Acceptors, Health --- Care Nonacceptor, Health --- Care Nonacceptors, Health --- Health Care Acceptability --- Health Care Acceptor --- Health Care Acceptors --- Health Care Nonacceptor --- Health Care Nonacceptors --- Healthcare Acceptabilities --- Healthcare Acceptability --- Healthcare Patient Acceptance --- Healthcare Patient Acceptances --- Utilization, Health Care --- Non-Profit Organizations --- Organizations, Non-Profit --- Nonprofit Organizations --- Non Profit Organizations --- Non-Profit Organization --- Nonprofit Organization --- Organization, Non-Profit --- Organization, Nonprofit --- Organizations, Non Profit --- Community Involvement --- Public Participation --- Community Action --- Consumer Involvement --- Action, Community --- Actions, Community --- Community Actions --- Community Involvements --- Consumer Involvements --- Involvement, Community --- Involvement, Consumer --- Involvements, Community --- Participation, Community --- Participation, Consumer --- Participation, Public --- Refusal to Participate --- Public Health Administration --- Social Work --- Community Health Planning --- Public Opinion --- Patient Satisfaction --- Political Activism --- Patient Care Planning --- Patient Participation. --- Voluntary Health Agencies. --- patients --- santé --- cancer --- association de patients --- Malades --- Relations personnel médical-patient --- Associations --- Médecine --- Communication en médecine --- Relations publiques --- France --- Recherche --- 1990-....


Book
Patient engagement : a consumer-centered model to innovate healthcare
Authors: ---
ISBN: 3110452448 311045243X 3110452650 Year: 2015 Publisher: De Gruyter

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Patient engagement should be envisaged as a key priority today to innovate healthcare services delivery and to make it more effective and sustainable. The experience of engagement is a key qualifier of the exchange between the demand (i.e. citizens/patients) and the supply process of healthcare services. To understand and detect the strategic levers that sustain a good quality of patients' engagement may thus allow not only to improve clinical outcomes, but also to increase patients' satisfaction and to reduce the organizational costs of the delivery of services. By assuming a relational marketing perspective, the book offers practical insights about the developmental process of patients' engagement, by suggesting concrete tools for assessing the levels of patients' engagement and strategies to sustain it. Crucial resources to implement these strategies are also the new technologies that should be (1) implemented according to precise guidelines and (2) designed according to a user-centered design process. Furthermore, the book describes possible fields of patients' engagement application by describing the best practices and experiences matured in different fields

Keywords

Patient Participation --- Delivery of Health Care --- Diffusion of Innovation --- Communication --- Patient Care Management --- Consumer Participation --- Patient Acceptance of Health Care --- Health Care Quality, Access, and Evaluation --- Community Health Services --- Information Science --- Attitude to Health --- Health Care --- Consumer Organizations --- Health Services Administration --- Health Services --- Organizations --- Health Care Economics and Organizations --- Health Care Facilities, Manpower, and Services --- Community Participation --- Community-Based Distribution --- Contraceptive Distribution --- Delivery of Healthcare --- Dental Care Delivery --- Distribution, Non-Clinical --- Distribution, Nonclinical --- Distributional Activities --- Healthcare --- Healthcare Delivery --- Healthcare Systems --- Non-Clinical Distribution --- Nonclinical Distribution --- Delivery of Dental Care --- Health Care Delivery --- Health Care Systems --- Activities, Distributional --- Activity, Distributional --- Care, Health --- Community Based Distribution --- Community-Based Distributions --- Contraceptive Distributions --- Deliveries, Healthcare --- Delivery, Dental Care --- Delivery, Health Care --- Delivery, Healthcare --- Distribution, Community-Based --- Distribution, Contraceptive --- Distribution, Non Clinical --- Distributional Activity --- Distributions, Community-Based --- Distributions, Contraceptive --- Distributions, Non-Clinical --- Distributions, Nonclinical --- Health Care System --- Healthcare Deliveries --- Healthcare System --- Non Clinical Distribution --- Non-Clinical Distributions --- Nonclinical Distributions --- System, Health Care --- System, Healthcare --- Systems, Health Care --- Systems, Healthcare --- Health Attitude --- Attitude, Health --- Attitudes, Health --- Health Attitudes --- Health, Attitude to --- Information Sciences --- Science, Information --- Sciences, Information --- Community Healthcare --- Health Services, Community --- Services, Community Health --- Community Health Care --- Care, Community Health --- Community Health Service --- Community Healthcares --- Health Care, Community --- Health Service, Community --- Healthcare, Community --- Healthcares, Community --- Service, Community Health --- Healthcare Quality, Access, and Evaluation --- Acceptability of Healthcare --- Acceptors of Health Care --- Health Care Utilization --- Nonacceptors of Health Care --- Patient Acceptance of Healthcare --- Acceptability of Health Care --- Health Care Seeking Behavior --- Care Acceptor, Health --- Care Acceptors, Health --- Care Nonacceptor, Health --- Care Nonacceptors, Health --- Health Care Acceptability --- Health Care Acceptor --- Health Care Acceptors --- Health Care Nonacceptor --- Health Care Nonacceptors --- Healthcare Acceptabilities --- Healthcare Acceptability --- Healthcare Patient Acceptance --- Healthcare Patient Acceptances --- Utilization, Health Care --- Community Involvement --- Public Participation --- Community Action --- Consumer Involvement --- Action, Community --- Actions, Community --- Community Actions --- Community Involvements --- Consumer Involvements --- Involvement, Community --- Involvement, Consumer --- Involvements, Community --- Participation, Community --- Participation, Consumer --- Participation, Public --- Care Management, Patient --- Management, Patient Care --- Communication Programs --- Communications Personnel --- Misinformation --- Personal Communication --- Communication Program --- Communication, Personal --- Personnel, Communications --- Program, Communication --- Programs, Communication --- Innovation Diffusion --- Diffusion, Innovation --- Patient Activation --- Patient Empowerment --- Patient Engagement --- Patient Involvement --- Patient Participation Rates --- Activation, Patient --- Empowerment, Patient --- Engagement, Patient --- Involvement, Patient --- Participation Rate, Patient --- Participation Rates, Patient --- Participation, Patient --- Patient Participation Rate --- Healthcare Facilities, Manpower, and Services --- Healthcare Economics and Organizations --- Non-Governmental Organizations --- Nongovernmental Organizations --- Organizations, Nongovernmental --- Non Governmental Organizations --- Non-Governmental Organization --- Nongovernmental Organization --- Organization --- Organization, Non-Governmental --- Organization, Nongovernmental --- Organizations, Non-Governmental --- Services, Health --- Health Service --- Service, Health --- Administration, Health Services --- Organizations, Consumer --- Consumer Organization --- Organization, Consumer --- organization & administration --- Public Opinion --- Public Health Administration --- Social Work --- Community Health Planning --- Patient Satisfaction --- Political Activism --- Patient Care Planning --- Culturally Appropriate Technology --- Information Dissemination --- Refusal to Participate --- Patient participation. --- Health services administration. --- Health administration --- Health care administration --- Health care management --- Health sciences administration --- Health services management --- Medical care --- Health planning --- Public health administration --- Medical cooperation --- Participation --- Therapist and patient --- Administration --- Management

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