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Human rights --- Professional ethics. Deontology --- Human medicine --- Bioethics --- Human experimentation in medicine --- Medical ethics --- Droits de l'homme (Droit international) --- Bioéthique --- Expérimentation humaine en médecine --- Ethique médicale --- Congresses --- Law --- Congrès --- Droit --- Human Rights --- Ethics, Medical --- Human Experimentation --- Law and legislation --- HUMAN EXPERIMENTATION --- HUMAN RIGHTS --- Congresses. --- congresses --- congresses. --- Ethics, medical --- Human experimentation --- Bioéthique --- Expérimentation humaine en médecine --- Ethique médicale --- Congrès --- Human experimentation in medicine - Law and legislation --- Human Rights - congresses --- Ethics, Medical - congresses --- Human Experimentation - congresses

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Sociology of health --- General ethics --- United States --- Human Experimentation. --- Ethics, Medical. --- Research. --- Human experimentation in medicine --- Experimentation on humans, Medical --- Medical experimentation on humans --- Medical ethics --- Medicine --- Medicine, Experimental --- Clinical trials --- Laboratory Research --- Research Activities --- Research and Development --- Research Priorities --- Activities, Research --- Activity, Research --- Development and Research --- Priorities, Research --- Priority, Research --- Research Activity --- Research Priority --- Research, Laboratory --- Ethics, Research --- Medical Ethics --- Professionalism --- Bioethics --- Human Research Subject Protection --- Experimentation, Human --- Helsinki Declaration --- Bioethical Issues --- Embryo Research --- Fetal Research --- Research Subjects --- Research --- ethics --- Human experimentation in medicine. --- Human experimentation. --- Ethics --- Human experimentation --- medical --- medical. --- Ethics, Medical --- Human Experimentation --- United States of America

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Lainie Ross presents a rigorous critical investigation of the development of policy governing the involvement of children in medical research. She examines the shift in focus from protection of medical research subjects, enshrined in post-World War II legislation, to the current era in which access is assuming greater precedence. Infamous studies such as Willowbrook (where mentally retarded children were infected with hepatitis) are evidence that before the policy shift protection was not always adequate, even for the most vulnerable groups. Additional safeguards for children were first implemented in many countries in the 1970s and 1980s; more recent policies and guidelines are trying to promote greater participation. Ross examines whether the safeguards work, whether they are fair, and how they apply in actual research practice, and she offers specific recommendations to modify current policies and guidelines.

Professional ethics. Deontology --- Pediatrics --- Children --- Human experimentation in medicine --- Human Experimentation --- Ethics, Research --- Child --- Research --- Moral and ethical aspects --- Legal status, laws, etc --- Human experimentation in medicine. --- Legal status, laws, etc. --- Moral and ethical aspects. --- Pediatrics - Research - Moral and ethical aspects --- Children - Research - Moral and ethical aspects --- Children - Legal status, laws, etc

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Status of persons --- Human rights --- Medical law --- Human experimentation in medicine --- Informed consent (Medical law) --- Law and legislation --- Law and legislation. --- Informed consent (Medical law).

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Her name was Henrietta Lacks, but scientists know her as HeLa. She was a poor Southern tobacco farmer, yet her cells--taken without her knowledge--became one of the most important tools in medicine. The first "immortal" human cells grown in culture, they are still alive today, though she has been dead for more than sixty years. HeLa cells were vital for developing the polio vaccine; uncovered secrets of cancer and viruses; helped lead to in vitro fertilization, cloning, and gene mapping; and have been bought and sold by the billions. Yet Henrietta Lacks is buried in an unmarked grave. Her family did not learn of her "immortality" until more than twenty years after her death, when scientists began using her husband and children in research without informed consent. The story of the Lacks family is inextricably connected to the dark history of experimentation on African Americans, the birth of bioethics, and the legal battles over whether we control the stuff we are made of--From publisher description.

Cultures cellulaires. --- Noirs américains. --- Secret médical. --- Responsabilité civile. --- Expérimentation humaine en médecine --- Éthique médicale. --- Cancer --- African American women --- Human experimentation in medicine --- HeLa cells. --- Cell culture. --- Medical ethics. --- Histoire. --- Recherche. --- Patients --- History. --- Research. --- Lacks, Henrietta, --- Health. --- Professional ethics. Deontology --- Human rights --- Medical law --- History of human medicine --- Human genetics --- Tissue donors --- Tissue and organ procurement --- African Americans --- Confidentiality --- Prejudice --- HeLa cells --- Human experimentation --- ethics