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Cancer --- Palliative Care --- Palliative treatment --- Miscellanea.
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Physician-Patient Relations --- Attitude to Death --- Palliative Care
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Hospice care --- Palliative treatment --- Nursing --- Hospice Care --- Palliative Care
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Palliative treatment --- Nursing --- Soins palliatifs --- Soins infirmiers --- Palliative Care --- Ethics, Nursing --- Nurse-Patient Relations --- Terminal Care
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En tant que soignant en soins palliatifs, lorsque nous nous rendons au domicile d’un malade en fin de vie, nous sommes-nous déjà posés la question de la perception par les patients et leur entourage de nos interventions soignantes ?
Par notre approche théorique et notre recherche qualitative réalisées à l’aide d’en quêtes auprès de patients en fin de vie et de leur entourage, nous avons tenté d’approcher le vécu de ces personnes face aux interventions de l’équipe soignante des soins palliatifs.
Nous le verrons à la lecture de la partie pratique, les paroles d’un malade en fin de vie et/ou de sa famille confrontés à la réalité du soin à domicile ne sont pas de l’ordre de la révolte, de la critique ou de la connaissance à outrance. Elles nous semblent de l’ordre d’un vécu très particulier, parfois difficile, mais qu’ils nous ont fait partager avec beaucoup de simplicités et de souhait de témoigner d’une expérience de vie singulière.
Remettre en question notre pratique de soignants en soins palliatifs, en écoutant ce que les patients et les familles perçoivent de nos interventions, en faisant part de leurs attentes, souhaits et sentiments, sera, en fin de compte, le défi de ce mémoire. Ce défi concerne chacun des professionnels de soins palliatifs parce qu’ils ont choisi de s’investir dans une branche particulière de la médecine mais également parce qu’ils sont à l’initiative, avec les services de gériatrie, d’une méthode de travail spécifique dans les soins de santé : l’interdisciplinarité.
L’ interdisciplinarité est un élément fondamental dans la démarche de soin palliatif. Elle n’a cessé de démontrer son efficacité dans le soin aux personnes particulièrement fragilisées non seulement par un problème médical mais également psychologique, sociale voire spirituel.
C’est par le développement du contexte des soins palliatifs en Belgique que nous débutons ce mémoire. Différentes dispositions législatives sont apparues cette année qui ne sont pas sans conséquences sur l’organisation des soins palliatifs.
Interdisciplinarité et considérations éthiques liées à la personne en fin de vie nous permettront de préciser les notions d’équipe et de travail en commun.
Partenaires de soins, patients et familles ont optés pour le domicile comme lieu privilégié de soins. Ce choix n’est pas facile, il demande « un investissement de cœur considérable ». Ces points termineront les chapitres de la partie théorique.
La seconde partie de notre travail sera consacrée à la recherche et à l’analyse des perceptions des patients et des familles sur les interventions des soignants de soins palliatifs à domicile. Nous tenterons de dégager le sens qui permettra aux soignants de remettre en question leur attitude soignante afin de permettre une évolution constante et, si possible, toujours pour un meilleur soin aux patients.
Palliative Care --- Home Care Services --- Professional-Patient Relations --- Professional-Family Relations
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Medical Oncology --- Family Practice --- Palliative Care --- Neoplasms --- Terminal Care --- education --- psychology --- psychology --- methods
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Palliative Care --- Carcinoma, Small Cell --- Communication --- Truth Disclosure --- Lung Neoplasms --- psychology
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The 2nd edition of the Oxford Textbook of Palliative Medicine is a thorough and compelling treatise on the subject of end-of-life care. It provides a much-needed resource for physicians and other health care providers who care for those who are dying.Nearly half of the text concerns the difficult task of controlling the myriad symptoms from which dying patients suffer. As would be expected from a text on dying, the chapters on pain control and management are exceedingly thorough and informative. Several options for alleviating pain are offered that might not have been considered in a more conventional textbook of medicine. The text also includes excellent chapters on palliative care for symptoms other than pain, including gastrointestinal, respiratory, neurologic, and dermatologic problems. Chapters on interventional radiology and palliative surgery are eye-opening for those who think of palliative care simply as giving morphine to patients at home. I found the well-thought-out discussion on how to break bad news to patients and their families particularly helpful.Authorship input from health care providers from around the globe ensure a perspective that is truly universal. Input from nonphysician health care personnel makes the book useful for nurses, social workers, and others who provide services to the dying patient. These sections make the text a must for any hospice team.The major drawback of this text is its size. Anyone looking for a concise, quick read in palliative medicine will not find it here. The first 200 pages of the book discuss the history and development of the modern hospice movement. While this makes for interesting reading, it would seem more appropriate in a separate text on the sociology or history of medicine.Although most discussions are complete, a paltry 4 paragraphs are devoted to helping the physician convey to patients and families that it may be time to enter a hospice program. In these times of medical miracles, magnetic resonance imaging, and “magic bullet” chemotherapeutic agents, patients and their families often continue to push to “do it all at all costs,” even when the physician who cares for the patient knows that palliative medicine is the best option. One of the greatest challenges practicing physicians face is convincing patients that “comfort care” will improve their quality of life more so than continuing the investigational process with its necessary poking, prodding, needles, and pain. More discussion on how to help patients and their families understand the dying process would have been time well spent.Above criticisms aside, the text is an excellent resource for those who care for the dying and should occupy a prominent place on the bookshelf of anyone who wishes to practice palliative medicine.
palliatieve zorg --- Pain Management. --- Palliative Care. --- Palliative treatment --- Palliation (Medical care) --- Palliative care --- Palliative medicine --- Therapeutics --- Palliative Surgery --- Palliative Therapy --- Surgery, Palliative --- Therapy, Palliative --- Palliative Treatment --- Care, Palliative --- Palliative Treatments --- Treatment, Palliative --- Treatments, Palliative --- Pain --- Terminal Care --- Hospice and Palliative Care Nursing --- Palliative Medicine --- Management, Pain --- Managements, Pain --- Pain Managements --- Chronic Disease --- soins palliatifs --- therapy --- Pain Management --- Palliative Care --- #gsdb5 --- Palliative Supportive Care --- Supportive Care, Palliative
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Terminal care --- Advance directives (Medical care) --- Catastrophic illness --- Intractable pain --- Palliative treatment --- Terminal Care. --- Advance Directives. --- Catastrophic Illness --- Pain, Intractable --- Palliative Care. --- Patient Care. --- Treatment --- therapy.
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Confidentiality --- Decision Making --- Ethics, Medical --- Palliative Care --- Physician-Patient Relations --- Palliative treatment --- Terminal care --- Moral and ethical aspects --- Decision making --- Palliative Care. --- Confidentiality. --- Professional ethics. Deontology --- Human medicine --- Decision Making. --- Ethics, Medical. --- Physician-Patient Relations. --- Decision making. --- Moral and ethical aspects. --- End-of-life care --- Terminally ill --- Palliation (Medical care) --- Palliative care --- Palliative medicine --- Care and treatment --- Medical care --- Care of the sick --- Critical care medicine --- Death --- Therapeutics --- Palliative treatment - Moral and ethical aspects --- Palliative treatment - Decision making --- Terminal care - Moral and ethical aspects --- Terminal care - Decision making
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