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They Never Want to Tell You transcends the negative metaphors and clichés of life-threatening disease, to give voice to the culture of cancer and to the behavior and attitudes of those who function within that culture-as patients, medical professionals, family, and friends. In these extraordinary narratives, children coping with cancer reveal their most personal experiences, and they speak with a candor that breaks through the cultural taboos ostensibly designed to protect us from the disease. The rich, compassionate, and honest words of these children give expression to concerns that adults who are struggling with cancer find nearly impossible to articulate. Free of social conventions and cognitive distortions, each story presents a powerful variation on the theme of survival in the face of the continuing uncertainties of life-threatening disease. Bearison, a developmental psychologist and psychotherapist, is keenly aware of the psychological impact of cancer on children, particularly as survival times for childhood cancers lengthen and complex treatments intensify concern about the emotional-not merely physical-well-being of children. Bearison has culled from scores of interviews the most salient moments that represent these individual children in their shared struggle with disease. In these pages the children express their wildest hopes and worst fears about cancer. They speak of the absolute necessity of full disclosure, the problems of relating to friends and family, the difficult adjustment to hair loss, their feelings of punishment, grief, and spirituality, and many other issues. In the course of these stories the children reveal not only their will to survive and their extraordinary capacity to understand themselves and their condition, but their altruistic desire to share that understanding with other children as well as with adults who have cancer. "They Never Want to Tell You" is rich and rewarding reading for cancer patients, their families, and health-care professionals alike.
Cancer in children --- Cancer --- Patients --- Patients.
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When Doris Brett's fit and healthy 59-year-old husband Martin had a stroke, they were unexpectedly thrown into a journey of discovery. What began as a minor stroke turned into a golf-ball sized blood clot on his brain, followed by a life-threatening heart condition. Later, Doris learned that she carried the potentially deadly BRCA1 genetic mutation. Due largely to Doris' research into brain plasticity and the neurotherapy techniques she implemented, Martin's recovery was exceptional and he has now returned to all of his pre-stroke activities. The Twelfth Raven is a literary journey through a s
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The definitive core text in its field, Stroke Recovery and Rehabilitation is a comprehensive reference covering all aspects of stroke rehabilitation-from neurophysiology of stroke recovery through the latest treatments, interventions, and outcomes. This second edition welcomes the expertise of a new editor, George Wittenburg, MD, PhD, and is completely updated to reflect recent advances in scientific understanding of neural recovery and ongoing clinical progress. It also features expanded coverage of key issues, five entirely new chapters, and the contributions of many new authors. The second
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Il existe une véritable « blessure de l'identité » dans l'épreuve de la maladie : une dégradation du sentiment de soi et de l'estime personnelle qui atteignent très profondément le sujet malade ; une catastrophe intime, en somme. Les modifications corporelles et psychiques que la maladie provoque, la difficulté à se reconnaître dans des postures ou des traits inconnus, entretiennent un sentiment d'étrangeté ou d'exil hors de soi. Il faut donc s'interroger sur une forme de soin qui s'attache à réconcilier le patient avec une identité transformée par la maladie, le familiariser avec une nouvelle existence, l'aider à retrouver le goût de soi. Cette « peau de soins » embrassant un patient écorché par la violence d'une médecine souvent intrusive doit ainsi permettre de réparer une identité blessée.
Psychology, Medical. --- Patients --- Psychology.
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Drug addiction --- Cancer --- Patients
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As life expectancy increases in India, the number of people living with dementia will also rise. Yet little is known about how people in India cope with dementia, how relationships and identities change through illness and loss. In addressing this question, this book offers a rich ethnographic account of how middle-class families in urban India care for their relatives with dementia. From the husband who wakes up at 3 am to feed his wife ice-cream to the daughters who gave up employment for seven years to care for their mother with dementia, this book illuminates the local idioms on dementi
Senile dementia --- Senile dementia --- Caregivers --- Patients --- Care --- Patients --- Family relationships
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Documentary photography --- Bulimia --- Bulimia --- Patients --- Patients --- Family relationships --- Abril, Laia.
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