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Après avoir expliqué les finalités propres, les visées et les raisons d'être des big data en matière médicale, l'auteur, économiste et gestionnaire de santé, en décrit les enjeux et risques éthiques fondamentaux : intérêt d'une médecine connectée, mesurée et personnalisée ; évaluation éthique des big data médicales ; gouvernance des données personnelles de santé. ©Electre 2016

Medicine --- Data protection. --- Medical ethics. --- Medical records --- Médecine --- Protection de l'information (Informatique) --- Ethique médicale --- Dossiers médicaux --- Data processing. --- Access control. --- Informatique --- Accès --- Contrôle --- Medical Informatics --- Ethics, Medical --- Computer Security --- Medical Records --- Confidentiality

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Medical confidentiality is an essential cornerstone of effective public health systems, and for centuries societies have struggled to maintain the illusion of absolute privacy. In this age of health databases and increasing connectedness, however, the confidentiality of patient information is rapidly becoming a concern at the forefront of worldwide ethical and political debate. In Contesting Medical Confidentiality, Andreas-Holger Maehle travels back to the origins of this increasingly relevant issue. He offers the first comparative analysis of professional and public debates on medical confidentiality in the United States, Britain, and Germany during the late nineteenth and early twentieth centuries, when traditional medical secrecy first came under pressure from demands of disclosure in the name of public health. Maehle structures his study around three representative questions of the time that remain salient today: Do physicians have a privilege to refuse court orders to reveal confidential patient details? Is there a medical duty to report illegal procedures to the authorities? Should doctors breach confidentiality in order to prevent the spread of disease? Considering these debates through a unique historical perspective, Contesting Medical Confidentiality illuminates the ethical issues and potentially grave consequences that continue to stir up public debate.

Confidential communications --- Physicians --- Privacy, Right of --- History --- History. --- Professional ethics. --- Médecine --- Médecins --- Droit à la vie privée --- Professional ethics --- Secret professionnel --- Histoire --- Déontologie --- Médecine --- Médecins --- Droit à la vie privée --- Déontologie --- Britain. --- Germany. --- United States. --- abortion. --- medical confidentiality. --- medical privilege. --- medical secrecy. --- patient information. --- privacy. --- venereal diseases.

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Today anyone can purchase technology that can track, quantify, and measure the body and its environment. Wearable or portable sensors detect heart rates, glucose levels, steps taken, water quality, genomes, and microbiomes, and turn them into electronic data. Is this phenomenon empowering, or a new form of social control? Who volunteers to enumerate bodily experiences, and who is forced to do so? Who interprets the resulting data? How does all this affect the relationship between medical practice and self care, between scientific and lay knowledge? Quantified examines these and other issues that arise when biosensing technologies become part of everyday life. The book offers a range of perspectives, with views from the social sciences, cultural studies, journalism, industry, and the nonprofit world. The contributors consider data, personhood, and the urge to self-quantify; legal, commercial, and medical issues, including privacy, the outsourcing of medical advice, and self-tracking as a "paraclinical" practice; and technical concerns, including interoperability, sociotechnical calibration, alternative views of data, and new space for design.

Biosensors. --- Medical instruments and apparatus. --- Biosensing Techniques. --- Monitoring, Physiologic --- Confidentiality. --- #SBIB:316.334.3M30 --- #SBIB:316.334.3M50 --- #SBIB:316.334.3M40 --- Confidential Information --- Secrecy --- Patient Data Privacy --- Privacy of Patient Data --- Privileged Communication --- Communication, Privileged --- Communications, Privileged --- Data Privacy, Patient --- Information, Confidential --- Privacy, Patient Data --- Privileged Communications --- Duty to Warn --- Privacy --- Disclosure --- Anonymous Testing --- Parental Notification --- Biosensing Technics --- Bioprobes --- Biosensors --- Electrodes, Enzyme --- Bioprobe --- Biosensing Technic --- Biosensing Technique --- Biosensor --- Electrode, Enzyme --- Enzyme Electrode --- Enzyme Electrodes --- Technic, Biosensing --- Technics, Biosensing --- Technique, Biosensing --- Techniques, Biosensing --- Microchemistry --- Apparatus, Medical --- Instruments, Medical --- Medical apparatus --- Medical devices --- Medical products --- Medicine --- Biomedical engineering --- Medical supplies --- Scientific apparatus and instruments --- Biodetectors --- Biological detectors --- Biological sensors --- Biomedical detectors --- Biomedical sensors --- Detectors --- Medical instruments and apparatus --- Physiological apparatus --- trends. --- Medische sociologie: gezondheidsgedrag --- Organisatie van de gezondheidszorg: algemeen, beleid --- Medische sociologie: zorgenverstrekkers, relatie met hulpvragers --- Apparatus --- Equipment and supplies --- Instruments --- Wearable Electronic Devices --- INFORMATION SCIENCE/Communications & Telecommunications --- INFORMATION SCIENCE/General --- COMPUTER SCIENCE/Human Computer Interaction --- Biosensing Techniques --- Confidentiality --- trends

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The Palestinian Authority is committed to improving state-citizen relations through various mechanisms including the complaints resolution. The objective of this technical assistance, which has been undertaken at the request of the DGC, is to strengthen the Complaint Handling Mechanisms (CHMs) in five Palestinian ministries/government entities that are supported by World Bank-financed projects, as well as the DGC. This summary report synthesizes key findings that have emerged throughout the technical assistance and formulates Ministry-specific recommendations. It forms the basis of a possible phase II of the project, which would support the implementation of recommendations. The report presents the innovative methodology used to bring together the demand- and supply-side perspectives on CHMs in targeted ministries; the key findings from the survey and the ministry-by-ministry assessments; the key suggestions for improvement; and finally the next steps. The technical assistance has generated high client interest among the concerned Ministries, the DGC and development partners.The technical assistance has generated high client interest among the concerned Ministries, the DGC and development partners. This summary report synthesizes key findings that have emerged throughout the technical assistance and formulates Ministry-specific recommendations. It forms the basis of a possible phase II of the project which would support the implementation of recommendations. The technical assistance also aligns with the focus on strengthening the citizen-state compact specified in the WBG Assistance Strategy FY15-16 for the West Bank and Gaza. The report is structured as follows: Part two presents the context; Part three presents the methodology used to bring together the demand- and supply-side perspectives on CHMs in targeted ministries; Part four presents the key findings from the survey and the ministry-by-ministry assessments; Part five presents the key suggestions for improvement; and finally Part six presents the next steps.

Accountability --- Best Practices --- Business --- Capacity Building --- Civil Society Organizations --- Communication Strategies --- Confidentiality --- Consultants --- Corruption --- Corruption & anticorruption Law --- Data analysis --- Databases --- Ethics --- Good Governance --- Human Resources --- Human Rights --- Law and Development --- Leadership --- Legal Framework --- Nepotism --- Other Accountability/anti-Corruption --- Participation and Civic Engagement --- Participations and Civic Engagement --- Privacy --- Private Investment --- Private Sector --- Protocols --- Public Sector Development --- Public Sector Governance --- Regulations --- Senior Management --- Social Accountability --- Social Dev/Gender/Inclusion --- Social Development --- Software --- Technical Assistance --- Transparency --- Violence

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This highly original book is an ethnographic noir of how Big Data profits from patient private health information. The book follows personal health data as it is collected from inside healthcare and beyond to create patient consumer profiles that are sold to marketers. Primarily told through a first-person noir narrative, Ebeling as a sociologist-hard-boiled-detective, investigates Big Data and the trade in private health information by examining the information networks that patient data traverses. The noir narrative reveals the processes that the data broker industry uses to create data commodities—data phantoms or the marketing profiles of patients that are bought by advertisers to directly market to consumers. Healthcare and Big Data considers the implications these “data phantoms” have for patient privacy as well as the very real harm that they can cause.

Social sciences. --- Big data. --- Sociology. --- Human body --- Sex (Psychology). --- Gender expression. --- Gender identity. --- Social Sciences. --- Gender Studies. --- Big Data/Analytics. --- Knowledge - Discourse. --- Sociology of the Body. --- Social aspects. --- Data mining. --- Algorithmic knowledge discovery --- Factual data analysis --- KDD (Information retrieval) --- Knowledge discovery in data --- Knowledge discovery in databases --- Mining, Data --- Sex identity (Gender identity) --- Sexual identity (Gender identity) --- Identity (Psychology) --- Sex (Psychology) --- Queer theory --- Expression, Gender --- Sex role --- Psychology, Sexual --- Sex --- Sexual behavior, Psychology of --- Sexual psychology --- Sensuality --- Social theory --- Social sciences --- Data sets, Large --- Large data sets --- Behavioral sciences --- Human sciences --- Sciences, Social --- Social science --- Social studies --- Civilization --- Psychological aspects --- Confidentiality. --- Data Mining --- Electronic Health Records. --- Marketing of Health Services --- Medicine --- Ethics. --- Data processing. --- Database searching --- Human body-Social aspects. --- Data sets --- Human body—Social aspects.