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"Millions of Americans of all ages face the challenge of living with serious illnesses such as advanced cancer, heart, or lung disease. Many people with serious illness are increasingly cared for in community settings. While the number of community-based programs to provide care for those with serious illness has grown significantly, the quality of care provided is not consistent across geographic locations or care settings. Care for the serious illness population often features gaps in coordination across sites of care and poor patient and family perceptions as to the quality of care provided. In an effort to better understand and facilitate discussions about the challenges and opportunities related to identifying and implementing quality measures for accountability purposes in community-based serious illness care, the National Academies of Sciences, Engineering, and Medicine held a public workshop on April 17, 2018, in Washington, DC. Workshop participants explored the current state of quality measurement for people with serious illness, their families, and caregivers, with the aim of identifying next steps toward effectively implementing measures to drive improvement in the quality of community-based care for those facing serious illness. This publication summarizes the presentations and discussions from the workshop"--Publisher's description.
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Peu connue des usagers, la PMI est souvent considérée de manière péjorative comme un service social à destination des familles en difficultés ou en danger. Or sa mission principale réside pourtant dans le suivi médical post-natal, la prévention, l'éducation et l'accompagnement des usagers. Elle réunit ainsi des professionnels de tous secteurs, ce qui en fait une structure originale et précieuse dans la prise en charge globale des besoins de la population. Réaffirmer et clarifier son rôle et ses missions, valoriser ses atouts et repenser le vivre-ensemble, telle est la démarche du médecin Kristell Guével. Dans cet ouvrage introspectif réunissant 50 chroniques au vitriol, elle nous raconte son quotidien, entre humour, colère et lucidité, réaffirmant sa conviction que la prise en charge des patients passe par l'engagement, la bienveillance et le dialogue constant avec les parents.
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