TY - BOOK ID - 85297552 TI - The governance of genetic information : who decides? AU - Widdows, Heather AU - Mullen, Caroline PY - 2009 SN - 0511847467 1107189667 1107625424 1282336916 9786612336911 0511634374 051163482X 0511632444 0511631235 0511633645 0521509912 0511635273 PB - Cambridge : Cambridge University Press, DB - UniCat KW - Genetic screening KW - Privacy, Right of. KW - Medical records KW - Confidential communications KW - Medical ethics KW - Invasion of privacy KW - Privacy, Right of KW - Right of privacy KW - Civil rights KW - Libel and slander KW - Personality (Law) KW - Press law KW - Computer crimes KW - Data protection KW - Right to be forgotten KW - Secrecy KW - Human chromosome abnormalities KW - Medical screening KW - Moral and ethical aspects. KW - Government policy. KW - Access control. KW - Physicians KW - Law and legislation KW - Diagnosis KW - Law KW - General and Others UR - https://www.unicat.be/uniCat?func=search&query=sysid:85297552 AB - This volume maps the areas of ethical concern in the debate regarding the governance of genetic information, and suggests alternative ethical frameworks and models of regulation in order to inform its restructuring. Genetic governance is at the heart of medical and scientific developments, and is connected to global exploitation, issues of commodification, commercialisation and ownership, the concepts of property and intellectual property and concerns about individual and communal identity. Thus the decisions that are made in the next few years about appropriate models of genetic governance will have knock-on effects for other areas of governance. In short the final answer to 'Who Decides?' in the context of genetic governance will fundamentally shape the ethical constructs of individuals and their networks and relationships in the public sphere. ER -