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Genetic secrets: protecting privacy and confidentiality in the genetic era
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ISBN: 0300072511 Year: 1997 Publisher: New Haven, Conn. Yale University Press

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Pharmacogenomics : social, ethical, and clinical dimensions
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ISBN: 0471227692 9780471227694 Year: 2003 Publisher: Hoboken, N.J. : Wiley-Liss,

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Genetics and life insurance : medical underwriting and social policy
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ISBN: 9780262512596 9780262182362 Year: 2009 Publisher: Cambridge, Mass. The MIT press

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Genetics and life insurance : medical underwriting and social policy
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ISBN: 0262282712 9780262282710 1417561769 9781417561766 026218236X 9780262182362 Year: 2004 Publisher: [Place of publication not identified] MIT Press

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Insurance companies routinely use an individual's medical history and family medical history in determining eligibility for life insurance; this is part of the process of medical underwriting. Insurers have also long used genetic information, often derived from family history, in underwriting. But rapid advances in gene identification and genetic testing are changing the way we look at genetic information. Should the results of genetic testing (which might identify a predisposition toward disease not related to medical history) be available to life insurance medical underwriters? Few if any life insurers currently require genetic testing, but there are no laws or regulations prohibiting its use. Genetics and Life Insurance examines the complex economic, legal, and social issues surrounding the use of genetic information in life insurance underwriting. The contributors are legal scholars, representatives of the life insurance industry (including an actuary and an insurance physician), a geneticist, a genetic counselor, a philosopher, and a consumer advocate. They explore all aspects of an issue that has only recently drawn the attention of policymakers and the public.The book opens with a report on the results of a public opinion poll on genetics and life insurance. Succeeding chapters present the insurer perspective, a discussion of the economics of risk selection in life insurance, background information on the process of underwriting, a scientific analysis of genetic risks and mortality rates, a philosophical discussion of fairness and genetic underwriting, the viewpoints of consumers and genetics counselors, a comparison of different international policy approaches to the issue, and a legal analysis of antitrust implications when insurers collaborate in setting standards for medical underwriting. In the final chapter the editor addresses various policy options, examining the pros and cons of each one and assessing their political feasibility.

Genetic secrets
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ISBN: 0585359431 9780585359434 0300072511 0300080638 9780300080636 Year: 1997 Publisher: New Haven Yale University Press

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The dramatic explosion of information brought about by recent advances in genetic research brings welcome scientific knowledge. Yet this new knowledge also raises complex and troubling issues concerning privacy and confidentiality. This thought-provoking book is the first comprehensive exploration of these ethical, legal, and social issues. Distinguished experts in law, medicine, bioethics, public health, science policy, clinical genetics, philosophy, and other fields consider the many contexts in which issues of genetic privacy arise - from research and clinical settings to workplaces, insurance offices, schools, and the courts.


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Legal and ethical issues raised by the human genome project
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Year: 1991 Publisher: Houston University of Houston. Health Law and Policy Institute

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Employment law: cases and materials
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ISBN: 1566626129 Year: 1998 Publisher: New York (NY) Foundation

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Behavioral genetics : the clash of culture and biology.
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ISBN: 0801860695 0801874920 9780801874925 9780801860690 Year: 1999 Publisher: Baltimore Johns Hopkins university press

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Scientists conducting human genome research are identifying genetic disorders and traits at an accelerating rate. Genetic factors in human behaviour appear particularly complex and slow to emerge, yet have begun raising their own set of difficult ethical, legal and social issues. In his volume, Ronald Carson and Mark Rothstein bring together well-known experts from the fields of genetics, ethics, neurosciences, psychiatry, sociology and law, to address the cultural and biological underpinnings of behavioural genetics. The authors discuss a range of topics, including the ethical questions arising from gene therapy and screening, molecular research in psychiatry, and the legal ramifications and social consequences of behavioural genetic information. Throughout, they focus on two basic concerns: the quality of the science behind behavioural genetic claims and the need to formulate an appropriate, ethically defensible response when the science turns out to be good. This volume brings together experts from the fields of genetics, ethics, neurosciences, psychiatry, sociology and law, to address the cultural and biological underpinnings of behavioural genetics. The authors discuss a range of topics, including ethical questions arising from gene therapy.

The human genome project and the future of health care.
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ISBN: 0253332133 Year: 1996 Publisher: Bloomington Indiana university press

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This book examines how the Human Genome Project will reshape American health care. Leading scholars explore the clinical, ethical, legal, and policy implications of the Genome Project to see how it may affect the forms of health care available, who delivers it, who receives it, and who pays for it. Genetic prediction of future diseases - whether ineluctable certainties such as Huntington's, or uncertain "predispositions" for cancers, heart disease, and the like - will affect how patients and health professionals interact. It may force major reconsideration of certain institutions - such as health, life, and disability insurance - that rely on information about individuals' risks of illness and death. We may question what valid social purposes those institutions play and whether they are likely to become socially and ethically dysfunctional in light of the more extensive predictions that genetic information may make possible.

The Human Genome Project and the future of health care
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ISBN: 0585259658 9780585259659 0253332133 Year: 1996 Publisher: Bloomington : Indiana University Press,

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Keywords

Genetic Testing. --- Delivery of Health Care. --- Ethics. --- Social Environment. --- Environment, Social --- Social Ecology --- Social Context --- Context, Social --- Contexts, Social --- Ecologies, Social --- Ecology, Social --- Environments, Social --- Social Contexts --- Social Ecologies --- Social Environments --- Environment --- Egoism --- Ethical Issues --- Metaethics --- Moral Policy --- Natural Law --- Situational Ethics --- Ethical Issue --- Ethics, Situational --- Issue, Ethical --- Issues, Ethical --- Law, Natural --- Laws, Natural --- Moral Policies --- Natural Laws --- Policies, Moral --- Policy, Moral --- Censorship, Research --- Community-Based Distribution --- Contraceptive Distribution --- Delivery of Healthcare --- Dental Care Delivery --- Distribution, Non-Clinical --- Distribution, Nonclinical --- Distributional Activities --- Healthcare --- Healthcare Delivery --- Healthcare Systems --- Non-Clinical Distribution --- Nonclinical Distribution --- Delivery of Dental Care --- Health Care --- Health Care Delivery --- Health Care Systems --- Activities, Distributional --- Activity, Distributional --- Care, Health --- Community Based Distribution --- Community-Based Distributions --- Contraceptive Distributions --- Deliveries, Healthcare --- Delivery, Dental Care --- Delivery, Health Care --- Delivery, Healthcare --- Distribution, Community-Based --- Distribution, Contraceptive --- Distribution, Non Clinical --- Distributional Activity --- Distributions, Community-Based --- Distributions, Contraceptive --- Distributions, Non-Clinical --- Distributions, Nonclinical --- Health Care System --- Healthcare Deliveries --- Healthcare System --- Non Clinical Distribution --- Non-Clinical Distributions --- Nonclinical Distributions --- System, Health Care --- System, Healthcare --- Systems, Health Care --- Systems, Healthcare --- Genetic Screening --- Predictive Genetic Testing --- Predictive Testing, Genetic --- Testing, Genetic Predisposition --- Genetic Predisposition Testing --- Genetic Predictive Testing --- Genetic Screenings --- Genetic Testing, Predictive --- Predisposition Testing, Genetic --- Screening, Genetic --- Screenings, Genetic --- Testing, Genetic --- Testing, Genetic Predictive --- Testing, Predictive Genetic --- Genetic Predisposition to Disease --- Prenatal Diagnosis --- Preimplantation Diagnosis --- Cytogenetic Analysis --- Molecular Diagnostic Techniques --- Databases, Genetic --- Databases, Nucleic Acid --- Genetic Privacy --- diagnosis --- Human Genome Project --- Human Genome Project. --- HGP --- H.G.P. --- Moral and ethical aspects. --- Social aspects. --- United States.

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