Listing 1 - 10 of 20 << page
of 2
>>
Sort by
Promoting safe and effective genetic testing in the United States : final report of the task force on genetic testing.
Authors: ---
ISBN: 0801859727 0801859522 Year: 1998 Publisher: Baltimore Johns Hopkins university press,

Loading...
Export citation

Choose an application

Bookmark

Abstract

In view of the uncertainty of genetic test results, a task force was set up and charged with reviewing genetic testing in the US and making recommendations for the development of safe and effective testing. This work presents the conclusions of their study. Despite remarkable progress, much remains unknown about the risks and benefits of genetic testing. No effective interventions are yet available to improve the outcome of most inherited diseases; negative test results might not rule out future occurrence of disease, and positive test results do not necessarily mean the disease will inevitably develop. In view of this uncertainty, the Working Group on Ethical, Legal, and Social Implications of Human Genome Research at the National Institutes of Health and Department of Energy created the Task Force on Genetic Testing. Comprising representatives of fifteen major stakeholders in genetic testing and five government agencies involved with testing, the task force was charged with reviewing genetic testing in the United States and making recommendations to ensure the development of safe and effective genetic tests. In Promoting Safe and Effective Genetic Testing in the United States the members of this task force present the conclusions of their study. They begin by describing general principles involved in genetic testing, including informed consent, testing of children, confidentiality, and discrimination. They describe methods and policies to ensure the safety and effectiveness of new genetic tests, including criteria for developing tests and ways of ensuring compliance with those criteria. They then discuss how to ensure the quality of laboratories that perform genetic tests, including the role of laboratory personnel and methods of monitoring laboratory performance. They show how health care professionals outside the field of genetics can better understand the uses of genetic testing, and offer suggestions for changes in these professionals' education and training. Finally, they offer a look at testing for rare inherited genetic disorders.

Arab genetic disorders : a layman's guide.
Author:
ISBN: 0786414634 Year: 2003 Publisher: Jefferson McFarland,

Loading...
Export citation

Choose an application

Bookmark

Abstract

Covers genetic disorders that have occur with high frequency in Arab population or that are unique to them. The disorders are categorized by: blood; cardiovascular; central nervous system; connective tissue; endocrine system; metabolic; neuromuscular; respiratory; sensory; skeletal; and skin. Certain disorders tend to occur in some ethnic groups more than others. In 2001, McFarland published the author's Jewish Genetic Disorders ("superb guide...outstanding writing and well-organized text...current and comprehensive...exceptional" - Library Journal). This new work covers genetic disorders that have been noted to occur with relatively high frequency in Arab populations or that are unique to them. It begins with a discussion of the basic facts about genetics and genetic diseases, and who the Arab people are and why certain genetic disorders are more common in their population. The genetic disorders are then categorized as follows: blood, cardiovascular, central nervous system, connective tissue, endocrine system, metabolic, neuromuscular, respiratory, sensory, skeletal, and skin. For each category, the disorders are examined in terms of symptoms, frequency, cause, the occasional "Faustian Bargain," diagnosis, transmission, treatment, and prevention. References for more information are also provided. The book concludes with information on genetic counseling for Arab-Americans.

The lives to come : the genetic revolution and human possibilities.
Author:
ISBN: 0684827050 Year: 1997 Publisher: New York Touchstone Book,

Loading...
Export citation

Choose an application

Bookmark

Abstract

The Lives to Come is at once a concise and accessible guide to the research that scientists are conducting in the field of genetics, a realistic survey of the likely near-term contributions of that research to the treatment of disease, and a thoughtful probing of the deep moral and social issues raised by our increasing abilities to predict the onset of hereditary disease and to make decisions about the kinds of people who will be born. A distinguished scholar of the history and philosophy of science, Philip Kitcher insightfully addresses the practical and philosophical questions posed by the explosion of new discoveries in the field of genetics. As our ability to determine whether individuals are at risk for various diseases and disabilities increases, will medical treatments keep pace? Could widespread use of genetic tests lead to new forms of discrimination in insurance, employment, and how people are viewed by society? How can genetic knowledge improve law enforcement while protecting the rights of the innocent? As prenatal testing provides new opportunities to select the types of people brought into being, how can the abuse of that power be prevented so that we avoid the evils of the eugenic past? If scientists discover a genetic basis for traits deemed socially objectionable, might abortion become a tool for avoiding the birth of "undesirables"? To what extent do new discoveries support the idea that our destinies are written in our genes? More fundamentally, what will become of our self-image as we find out more and more about the mechanisms of our bodies and our brains?

Unnatural selection : the promise and the power of human gene research.
Author:
ISBN: 0553375156 Year: 1999 Publisher: New York (N.Y.) Bantam Books,

Loading...
Export citation

Choose an application

Bookmark

Abstract

"Unnatural selection" explores advances in human genetic research - and how these advances are redefining the way we view ourselves and our world. From physical illnesses to behavioral traits, the mapping of our genes is moving with astonishing rapiditiy. Every week brings word of new genetic findings. On the heels of each new finding comes the capacity to test for the disorder the gene may activate, then the test itself - and then the questions. Just because the test exists, should we be tested? The tests are often marketed by for-profit companies. Who determines what conditions warrant testing? Should it be up to the individual? A group of experts? A government agency? If a person discorvers he or she carries the gene for a particular disorder, what then? And, in the age of medical claim forms and computer networks, who else has access to that information? What if an employer finds out? If an insurance carrier denies future coverage? What about conceiving a child? Subjecting the fetus to prenatal genetic testing? If treatments for the condition lie well in the future, what benefit is it to know you or your child carry that gene?

Genes and future people: philosophical issues in human genetics
Author:
ISBN: 0813365600 0813365767 Year: 2001 Publisher: Boulder (Colo.) Westview

Loading...
Export citation

Choose an application

Bookmark

Abstract

The book is a sustained philosophical reflection on some of the metaphysical and moral issues presented by genetics and different forms of genetic intervention. Advances in genetic technology in general and medical genetics in particular will enable us to intervene in the process of human biological development which extends from zygotes and embryos to people. This will allow us to control to a great extent the identities and the length and quality of the lives of people who already exist, as well as those we bring into existence in the near and distant future. Genes and Future People explores two general philosophical questions, one metaphysical, the other moral: (1) How do genes, and different forms of genetic intervention (gene therapy, genetic enhancement, presymptomatic genetic testing of adults, genetic testing of preimplantation embryos), affect the identities of the people who already exist and those we bring into existence? and (2) How do these interventions benefit or harm the people we cause to exist in the near future and those who will exist in the distant future by satisfying or defeating their interest in having reasonably long and disease-free lives? Genes and Future People begins by explaining the connection between genes and disease, placing genetic within a framework of evolutionary biology. It then discusses such topics as how genes and genetic intervention influence personal identity, what genetic testing of individuals and the knowledge resulting from it entails about responsibility to others who may be at risk, as well as how gene therapy and genetic enhancement can affect the identities of people and benefit or harm them. Furthermore, it discusses various moral aspects of cloning human beings and body parts. Finally, it explores the metaphysical and moral implications of genetic manipulation of the mechanisms of aging to extend the human life span.The aim Genes and Future People is to move philosophers, bioethicists, and readers in general to reflect on the extent to which genes determine whether we are healthy or diseased, our identities as persons, the quality of our lives, and our moral obligations to future generations of people.

Genetic turning points : the ethics of human genetic intervention
Author:
ISBN: 0802849202 Year: 2001 Publisher: Cambridge : Eerdmans,

Loading...
Export citation

Choose an application

Bookmark

Abstract

"Genetic Turning Points is an outstanding study of the problem of genetic engineering and related ethical issues. It addresses difficult and sometimes technical matters in a style that is both clear and scholarly, and it provides valuable insights into issues that are being thrust to the fore by scientific progress. Genes store the directions for all life on earth. If you want to know where we might be going, read this book. It is a road map that can save you from many ill-fated journeys." - William R. Shea

Genetic ethics : Do the ends justify the genes?
Authors: --- ---
ISBN: 0802844286 Year: 1997 Publisher: Grand Rapids Paternoster Press

Loading...
Export citation

Choose an application

Bookmark

Abstract

Fueled by rapid advances in the availability of genetic information and the capability to intervene in response to it, a genetic revolution is now underway that has profound implications for all spheres of life. But the ethical issues raised - and sometimes overlooked - by this revolution are glaring. This timely volume, written by scholars and practitioners at the forefront of genetic research-including Francis Collins, Elizabeth Thomson, C. Christopher Hook, Arthur Dyck, Allen Verhey, V. Elving Anderson, Marsha Fowler, and Charles Colson-will help readers assess from a Christian perspective the challenging ethical questions and difficult personal and social decision-making situations raised by today's genetic advancements.

The double-edged helix : social implications of genetics in a diverse society.
Authors: --- --- --- --- --- et al.
ISBN: 0801869641 Year: 2002 Publisher: Baltimore Johns Hopkins University Press,

Loading...
Export citation

Choose an application

Bookmark

Abstract

The rapidly changing field of genetics affects society through advances in health-care and through implications of genetic research. This study addresses the impacts of new genetic discoveries and technologies on different segments of today's society. The book begins with a chapter on genetic complexity, and subsequent chapters discuss moral and ethical questions arising from today's genetics from the perspectives of health care professionals, the media, the general public, special interest groups and commercial interests.

Listing 1 - 10 of 20 << page
of 2
>>
Sort by